I react to waterproof bandaids i get a rash and it hurts ?you look good jaquie

Get well soon love you so much first

Can you explain the anatomy of a port and how exactly it works

I can't find the link to the iv dressing? Or did I just look over it?

Edit:
I was also wondering what kind of needle you use. I haven't seen one like yours before.

I can't tell you how perfect of timing this is. I have a referral with a general surgeon for a port.

I have that Lidocaine cream in patches. I didn’t know the cream was an option. Thanks for sharing.

I hope to get well soon love you

I was waiting for you to pen in a hidden Mickey where you wanted your new port placed.

Prayers

Get it with those panda slippers.

Hi Jaquie. You always put out such informative videos. Thanks for that! While my info may sound "out there," it has really helped me and I want to share it with you. I have MCAS, not disorder, so you my choose not to try this. I recently had been experiencing an increse in reactions. During a webinar for MCAS, the life coach talked about EMF sensitivity and that it's worth investigating to relieve some issues. Omgosh! It's actually working for me! I turn off my wifi when hubby is not home and at night. I, now, sleep like a baby. My heart rate has normalized and I feel less anxious. Best of all, my food, chemical and medication sensitivities have lessened. For petes sake, I was reacting to my thyroid meds! I need to be able to take those to live! Now this increase in reactions did start after using a fitbit, so some of my symptoms were from that usage. But that lead me to realize how other wireless devices are affecting me. Laptops, wireless headsets even tv is a problem. So, I have to be "grounding" to use those products. I use a grounding mat to watch videos now and it does help but I can't be on wifi too long. All this to say, you've added lots of stuff lately that may be affecting you ( Alexa, motorized bed). I hope you consider it. Check out earthing dot com. They have some products that can really make a difference. It could even help regulate your reactions to those port products you don't normally react to. It's worth a try!

Good luck! I hope it goes/went well!

SUGGESTION:
I’m not trying to be mean or rude but could you not show your port on the thumbnail to your videos. The only reason I’m asking is because I had an extremely traumatic experience in a hospital which caused me to have many different problems and your port is a trigger for me. I’m also asking because your videos come up a lot on my feed and a lot of them have triggering pictures. I don’t want to block you because I like your videos that aren’t triggering to me but I just can’t handle some of the thumbnails. Another reason is because I’ve met a lot of friends over social media that are going through the same things as I am and I know that they would greatly appreciate it if you would stop putting your medical equipment on your thumbnail and It would also be great if you could tell your friends that also have a YT channel to not put triggering pics on their thumbnail.

I’m not trying to be mean at all. It’s just a really big trigger for me and some of my friends.

You don’t have to follow my advice but I would greatly appreciate it ?

Thank you,
Emma ??

Good luck with it

Good luck!!!!

Jaquie good luck tomorrow

I know you struggle daily, but i love how much better you look and feel. God has bless your journey and helped many others on the way. Keep sharing = caring, blessings. Hugs and good wishes to you all. You make a good point about how sensitive the skin is and variety can help and trial and error. Many do not realize that soaps on the skin can be a major issue too so go through all the holistic soaps with little ingredients is something to search too. Not easy but so worth it to figure out what goes on you as well as what goes in you. The permanent marker tip helps for so many things, especially when dealing with kids and even dogs. I mark everything from containers to bottles, bags you name it, makes it idiot proof so someone like me can remember and also others would have a hint that there is special purpose to why it is being labeled. Thanks for everything Jaquie, and good surgery to you, God bless the path.

I found out I was allergic to adhesive when I got butterfly stitches. I had blisters on each side of the cut and they wound up putting in stitches any way. I know I only have a few to chose from and not to wear them too long. Thanks for all the hints and advice! Good luck!

Jaquie, I was wondering, when I have a dressing like that on, I find that the Glue, is what causes me reaction I also have a LATEX allergy that is Anaphalixis to it. so are you sure its not a Latex allergy? I was tested a long time ago, and mine actually came up off the charts 30+ you might think about getting tested for it. They have to take a lot of blood and send it to Washington DC -Shriners Hospital in Springfield Mass was setting up the testing to be done with Washington DC. Just thought you might like to know, maybe your just sensitive to it, but also I was told that over the years mine would increase, which has been lately. Every Latex Free Bandage still causes me problems. I hope this helps.

this is super helpful and you posted it at the perfect time bc we just started talking about me getting a port yesterday

Any time I watch videos where you explain anything regarding surgeries, "maintenence", or your diagnoses, I am always astounded at how much modern medicine can do. Like, knowing that people have researched and discovered these diagnoses and medicines and ways to handle everything and all these surgeries...it is just mind-blowing to me. Best to you with your surgery and recovery!

For those that can use IV3000 I use this tape. it is made by the same company and my mast cells react the least to it. I use tape to shore up my picc dressing in between changes. https://www.amazon.com/dp/B001SIYRO8/?coliid=I21TBU2V1AJXLR&colid=3HQHHEYL3SQ0I&psc=0&ref_=lv_ov_lig_dp_it

Thanks for sharing. Best wishes for a great surgery outcome. Cheers

Hoping all’s gone well, darling xxxxxxx

The cream doesnt work for me either. I use griplock to secure my line, they are a lifesaver as I always get caught on something! Hope your surgery went well!

I love you Jacquie iam so proud of you you are so awesome I'll be thinking of you tomorrow

I thought you were getting a fistula in your arm

Hi from Colorado. I am praying for your speedy recovery. God bless.

Jaquie or Chronically Jaquie fans, could you please tell me what brand the custom wheelchair is and how much it weighs? And what brand of power assist did you wind up with? I've got EDS, POTS, CSF leaks, and lupus, and it's time to look for a wheelchair, but I really want to be independent, so ideally I want a lightweight chair I can easily get in and out of my car, and the power assist, if it works for me, could mean I could go places in my own!

I always have emla patches when I have my blood drawn an Iv access

I was really hoping to come and find a video letting us know how surgery went..

You're so smart and well-spoken. You'd make a terrific teacher, teaching nurse, IV coach/mentor, etc. Thanks for all the encouragement and useful info, please know how appreciated you are.

Getting a port soon in my arm. Very anxious.

I hope you’ll do well post surgery!

I’m praying for you Jacquie!! I hope/pray that your surgery will go well

I use the clear tegaderm and iv 3000 and I'm allergic to the skin protector.

The emla doesn't work for me either Lol.

Thank you for this! I don't know if I'll get a port, I know I need fluids but haven't seen the right specialist yet.

Good luck Jacquie hope everything went well!

You're amazing Jaquie. You'll be in my thoughts. Get lots of rest and cuddles with Harlow. ❤??

Emla cream works best on mucus membranes, so that may also be why it doesn't work as well on your port. I'm a former body piercer and we never bothered with it unless we were doing heavy mucus membrane work.

You got this Jaquie. Good luck tomorrow.

Great tips ... I have allergies to all adhesive since my port . It literally burn my skin

She really is Brave Judd. I really hope surgery went well and doesn't set you back and you can continue to move forward ❤️

Omg i’m so early!! I love your channel❤️

You two are so cute together! Love your shower curtain! Where did you get it?

I’ve heard that for most people the Zelma cream is useless because it only numbs the very top surface of our skin, nothing underneath! From using it on kids for blood draws and IV pokes, I’d say it doesn’t do much!!! Lol

I love you so much. Good luck with your surgery

Gentle hugs and many prayers to you and for the best possible outcome to your surgery. Welcome home Judd.

Hi Jaquie, It's nice that your mother was with you. :) You are amazing!

Do you have any suggestions for "skin preps" to use to avoid allergic reactions to adhesives? This is an ongoing problem for me and I hadn't heard of preps!

Why is Harlow called Hippo?

You are such a strong and brave lady. You work through so much.

Thank you very much. This was a great help.

would you happen to have any tips on how to know if an air cast is on tight enough, or too tight? he has a lot of swelling in his ankle - injury was not quite 48 hours ago yet. it was quite frantic at the emergency room and the orthopedic surgeon was really hard to understand. The casting people said make sure to loosen it at night - but during the day make sure it's fairly snug - compression is good. I am just not sure how to tell? Any suggestions would be good.

there was a small fracture on the outside of the ankle bone (don't know the exact name of the bone but said it was on the growth plate) and he did soft tissue damage around the ankle . they put on the air cast boot ....Black , 5 velcro straps. they said he had to stay off the foot for 1 week and then after that he could start walking on it. I have let icing it off and on, been giving ibuprofen and keeping it elevated. they said to keep it fairly snug throughout the day but to loosen at bedtime. he woke up last night in a lot of pain....Advil had worn off but also I think the cast was either too loose or too tight. and I don't know which.ayne this is a longshot asking for help over the Internet but I was curious if you had any suggestions. thank you

Audio is actually dooodo

Haha - great video - thank you! I just bought crutches for my upcoming knee replacement alternate support and wasn't sure if I remembered how to adjust them properly. Turns out I did, but the video verified it. Grapefruit is great unless one is on certain meds! (Of course, anyone on those meds already knows the drill about grapefruit). And, yes, I saw you do the juggling up the arm trick. :D

Thank you! This is a very helpful video on the topic. I found the audio a bit hard to hear, even with good speakers, due to the echo in the room.

Best video on crutches ever! Keep up the good work. I have a question is using crutches for a fracture pinky toe overcompensating or something. Like will it seem like I'm overreacting. I can kind of hobble on my foot but after awhile the toe starts to hurt.

Thank you apparently I've been using crutches wrong for the last 2weeks ?.

Wow, I had my crutches completely off - the hand bar was two screws too low so my arms were completely straight and there was no precision as to how my steps would be! At first I was wondering when you'd get to the point but then after a few I enjoyed listening to you both but then I love MST3K so perhaps a running dialogue is something I enjoy more than most. Thank you for this video and sharing the information.

Thanks

Great help Thanks!! My 9 year old fractured his ankle and caused quite a bit of soft tissue damage and has an air cast/walking boot on and his crutches were not working great. We had them adjusted all wrong - nobody showed us how to use them.

Thanks very much guys!

Thanks for this. My in law came back from the hospital with crutches WAY TOO SHORT. I am bloody pissed that the care team left them so short ?